my final infusion (chemo)

hallelujah! »^..^«


My last chemo infusion! At least for now.
Hardly slept last night.
Working hard to raise money for the lupus
walk on September 12, 2009.

Visit donate.lupus.org/goto/lilianaguillen 
to make a secure online donation.

The MD thinks these infusions will help my kidneys. 
It'll take some time to determine if it worked.
I can't wait! I really want my kidneys to work
and would love to go shoe shopping.
Love, Lilykat  



--Message sent from my mobile

Anita Johnston

On Sunday morning I logged onto my www.wearelupus.org site and read the shocking news that Anita Johnston had lost her battle with Lupus and passed away. She passed away on Saturday night, Aug. 29th around 7:30 pm Australian time. Anita was only 24 years old and lived in Australia. She leaves behind a fiance named Regan and two little dogs, Gucci and Louis Vitton and two cats, Bella and Sugar. Anita battled Lupus since she was a mere 15 years old. She fiercely fought to live a life where the lupus would not beat her. But due to kidney involvement, she lost that battle.
Anita was a spitfire. She was so positive and upbeat even when times were bad. She advocated strongly to all of us on the site to always stand up for ourselves. Anita was the first person I ever met that experienced the same rash I get when the lupus flares. It starts in the mouth region of the face and includes the lips, cheeks, mouth ulcers and nose ulcers. When I get my own flares, people always ask if I am having a Herpes outbreak. :| This really bothers me. I've even had Dermatologists prescribe me anti-herpes medication because they think it's herpes. *sigh* If an educated person like a doctor can make this mistake, it's no wonder Joe Schmo on the street thinks I have an STD. It's LUPUS!! Discoid or Cutaneous Lupus to be exact. I always felt like an outsider among my fellow Lupus warriors until I met Anita. She really understood because she was the same. She had a contagious smile and an upbeat spirit and we all will miss her insight and advice on the website. If you were lucky enough to know her personally, I extend my deepest sympathies. Beautiful Anita, you are an angel now.....


Anita Johnston
Sunrise January 26, 1985....Sunset August 29, 2009